The Cystic Fibrosis Foundation (CFF){:target="_blank"} is the most prominent American nonprofit organization dedicated to helping patients with CF and their loved ones by providing 1) care, 2) education, 3) research, 4) support, and 5) outreach.
- The CFF has over 130 care centers{:target="_blank"} dedicated to treating CF, and has created the CFTR2 database to inform patients of which modulators are best suited to their particular mutation
- The CFF website provides a myriad of educational articles{:target="_blank"} about the cellular and genetic nature of CF, the various symptoms, and possible treatments
- The CFF sponsors research to develop novel CF treatments and search for a potential cure, and maintains a Patient Registry{:target="_blank"} to provide researchers valuable information about the health status of CF patients
- The CFF connects{:target="_blank"} CF patients with legal experts to help families explore their insurance options and other patients to create a supportive community
- The CFF hosts the Great Stride{:target="_blank"} walkathons through the United States to raise money to support their search for a cure to CF. In a personal interview, Mrs. Rice explained that she participates extensively in the Great Stride walkathons and the CFF’s other outreach programs as it is a mutually beneficial relationship: “They [the CFF] helps us, we help them.”
_For further support, please contact{:target="blank"} the CFF.