diff --git a/02-Data_Privacy.Rmd b/02-Data_Privacy.Rmd index de4505c..6d98588 100644 --- a/02-Data_Privacy.Rmd +++ b/02-Data_Privacy.Rmd @@ -197,13 +197,13 @@ It has been shown that certain types of de-identified genomic data can be re-ide The following articles have more extensive information about the current re-identification risk of different genomic data types: -https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8326502/ -https://pubmed.ncbi.nlm.nih.gov/23329047/ -https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8411901/ -https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5851792/ -https://www.eff.org/issues/genetic-information-privacy -https://www.eff.org/issues/law-and-medical-privacy -https://www.nature.com/articles/d41586-021-00331-5 +- [Privacy considerations for sharing genomics data](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8326502/) +- [Identifying personal genomes by surname inference](https://pubmed.ncbi.nlm.nih.gov/23329047/) +- [Preserving genomic privacy via selective Sharing](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8411901/) +- [Impact of HIPAA’s minimum necessary standard on genomic data sharing](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5851792/) +- [Genetic information privacy](https://www.eff.org/issues/genetic-information-privacy) +- [The law and medical privacy](https://www.eff.org/issues/law-and-medical-privacy) +- [The broken promise that undermines human genome research](https://www.nature.com/articles/d41586-021-00331-5) ## How to ensure the privacy of this information diff --git a/index.Rmd b/index.Rmd index 98be078..9f9bd97 100644 --- a/index.Rmd +++ b/index.Rmd @@ -20,4 +20,4 @@ knitr::write_bib(c( # About this course {-} -This course is part of a series of courses for the [Informatics Technology for Cancer Research (ITCR)](https://itcr.cancer.gov/) called the Informatics Technology for Cancer Research Education Resource. This material was created by the ITCR Training Network (ITN) which is a collaborative effort of researchers around the United States to support cancer informatics and data science training through resources, technology, and events. This initiative is funded by the following grant: [National Cancer Institute (NCI)](https://www.cancer.gov/) UE5 CA254170. Our courses feature tools developed by ITCR Investigators and make it easier for principal investigators, scientists, and analysts to integrate cancer informatics into their workflows. Please see our website at [www.itcrtraining.org](www.itcrtraining.org) for more information. Except where otherwise indicated, the contents of this course are available for use under the Creative Commons Attribution 4.0 license. You are free to adapt and share the work, but you must give appropriate credit, provide a link to the license, and indicate if changes were made. Sample attribution: Ethical Data Handling for Cancer Research by Fred Hutchinson Data Science Lab (CC-BY 4.0). You can download the illustrations by clicking [here](https://docs.google.com/presentation/d/1SRokLaGAc2hiwJSN26FHE0ZEEhPr3KQdyMICic8kAcs/edit?usp=sharing). +This course is part of a series of courses created for the [Informatics Technology for Cancer Research (ITCR)](https://itcr.cancer.gov/) Training Network (ITN). The ITN is a collaborative effort of researchers around the United States that supports cancer informatics and data science training through resources, technology, and events. This initiative is funded by the following grant: [National Cancer Institute (NCI)](https://www.cancer.gov/) UE5 CA254170. Our courses feature tools developed by ITCR Investigators and make it easier for principal investigators, scientists, and analysts to integrate cancer informatics into their workflows. Please see our [website](https://itcrtraining.org) at itcrtraining.org for more information. Except where otherwise indicated, the contents of this course are available for use under the Creative Commons Attribution 4.0 license. You are free to adapt and share the work, but you must give appropriate credit, provide a link to the license, and indicate if changes were made. Sample attribution: Ethical Data Handling for Cancer Research by Fred Hutchinson Data Science Lab (CC-BY 4.0). You can download the illustrations by clicking [here](https://docs.google.com/presentation/d/1SRokLaGAc2hiwJSN26FHE0ZEEhPr3KQdyMICic8kAcs/edit?usp=sharing).