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FHIR-47782 New narrative in design to Gender Harmony
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jddamore committed Jan 9, 2025
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Expand Up @@ -121,6 +121,10 @@ This specification does not dictate the conditions under which narrative is gene
This specification requires that any Person Name is represented including at least the given and family components. Even though it is recognized that there is not in all cultures the same concept of “family name”, no evidence has been collected in analyzing the international context (e.g., Japan, Korea, China) that justifies the retirement of this requirement. Moreover, due to the global scope of the International Patient Summary, the case of non-alphabetic representations of the names has also been considered. In this case, to facilitate the global use of the IPS, at least one alphabetic representation of the name SHALL be provided.
### Relationship to Gender Harmony
This specification includes extensions which draw from the universal realm [Cross-Paradigm Implementation Guide of Gender Harmony](https://hl7.org/xprod/ig/uv/gender-harmony/). While not required, this guide encourages implementers to adopt patterns from Gender Harmony, which is intended to provide definitive guidance on how to exchange clinical sex and gender affirming information using HL7 models. This guide includes direct references to [standard Gender Harmony FHIR extensions](https://hl7.org/xprod/ig/uv/gender-harmony/fhirgenderharmony.html) in the [IPS Patient profile](./StructureDefinition-Patient-uv-ips.html). One extension that may be used on any IPS resource is the [Sex Parameter for Clinical Use](http://hl7.org/fhir/StructureDefinition/patient-sexParameterForClinicalUse). While not referenced on all IPS profiels, we encourage implementers to review and consider this extension for use as appropriate.
### Medication Lists in the IPS
Medication lists may vary significantly depending on the context of use (e.g. support for prescription or dispensing, medication reconciliation, etc.) and on the type of information reported (e.g. patient-reported medication, prescribed, dispensed or administered medications, active or past medications, etc.). This is also true for the medication summary in a Patient Summary. It could be, for instance, a list of "Relevant prescribed medicines whose period of time indicated for the treatment has not yet expired whether it has been dispensed or not" (European guidelines on Patient Summary); a list of actually dispensed medications; a list of relevant medications for the patient (IHE PCC); or conversely, it could be a complete history including the full patient's prescription and dispensing history and information about intended drug monitoring (HL7 C-CDA).
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